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Jasmine, ea phelang le EB, a robetse betheng a senyehile sefahlehong le matsohong, o sheba letsoho la motho e moholo.

Emisa bohloko ba EB

EB (epidermolysis bullosa) ke sehlopha sa maemo a letlalo a lefutso a bohloko haholo a etsang hore letlalo le tabohe le ho phatloha ha le ama hanyane feela.
Tšehetso ea hau e re thusa ho ntlafatsa boleng ba bophelo kajeno le ho fumana mekhoa ea phekolo bakeng sa hosane.

FUMANA HONA Joale

 

Mohala oa thuso oa EB

Haeba o phela le EB, ka kopo re letsetse ho 01344 577 689. Ho buloa Mantaha ho isa Labohlano ho tloha 8am ho isa 5:30pm.

Kapa fumana likarabo tsa lipotso tsa hau tse ngata 24/7 sebelisa ea rona ho senya. Tobetsa feela aekhone e hukung e ka tlase-le letona la skrini.

Bala lintlha tsa rona tsa tšohanyetso

Ka hare ho lebenkele la liphallelo la DEBRA le fanang ka khetho e ntle ea liaparo le lintho tse ling.

Mabenkele a rona a liphallelo

Ka ho reka mabenkeleng a lithuso a DEBRA, u thusa batho ba phelang le EB, hammoho le ho ba molemo bakeng sa mokotla oa hau le polanete ea rona.

Fumana lebenkele la DEBRA
Folakha e nang le "Drayton Manor Resort" ka pel'a tora.

Likopo tsa Litho tsa Mafelo-beke a 2026 li se li butsoe

Mafelo-beke a Litho a tla khutlela Drayton Manor Resort ka Moqebelo oa la 16 le Sontaha sa la 17 Mots'eanong. Etsa kopo hona joale ho fumana sebaka sa hau!

etsa kopo mona

Diketsahalo tsa DEBRA

Fumana liketsahalo tsohle tsa DEBRA

Peiso ea Likepe tsa Drakone ea 2026

Kena #TeamDEBRA bakeng sa Lebelo la Likepe la Lidrakone la London la 2026! Itokisetse letsatsi le sa lebaleheng la monate, tšebelisano-'moho le botsoalle...
Ithute haholoanyane

Leeto la Baesekele ho tloha London ho ea Brighton 2026

Palama limaele tse 54 le #TeamDEBRA ka Phuptjane. Ho qala ho Clapham Common mme ho phethela lebopong la Brighton. Eba le makholo a baesekele ba maemo ohle a boiphihlelo bakeng sa phephetso ena e makatsang!

 

Ithute haholoanyane

Lijo tsa Mantsiboea tsa DEBRA tsa Baphehi ba Baholo 2026

Hosted by Michel Roux, the DEBRA Great Chefs’ Dinner returns to The Langham, London on Monday 28 September 2026. DEBRA’s...
Ithute haholoanyane

Litaba le li-blog tsa morao-rao tse tsoang ho DEBRA

Bona litaba tsohle
Momathi oa mosali ea phahamisitseng matsoho 'me a apere hempe ea mokhatlo oa liphallelo ea "Debra" o keteka ha Sehlopha sa DEBRA se phethela Marathon ea London ea 2025, se pota-potiloe ke letšoele le phelang ka letsatsi le chabileng.
30th April April 2026

Sehlopha sa London Marathon 2026 DEBRA se bokella £54,000 ho ea pele.

Ithute haholoanyane
Basali ba bane ba eme hammoho ba tšoere khau ka pel'a setšoantšo se seputsoa se nang le matšoao a "BHBIA" le "BOBI Awards".
30th April April 2026

Phuputso ea EB PSP e rometsoeng ke DEBRA e hapa Khau ea Molemohali oa Bohlale ba Khoebo

Ithute haholoanyane
Motho o supa setshwantsho se pampitshaneng ya tlhahisoleseding ya bongaka, se pota-potilwe ke ditokomane tse ding tsa saense tafoleng ya lepolanka.
23rd April 2026

Ho Qala maqephe a lintlha a 'The Science Behind'

Ithute haholoanyane
Letšoao la DEBRA UK. Letšoao le na le litšoantšo tsa serurubele se seputsoa le lebitso la mokhatlo. Ka tlase, tagline e baleha "The Butterfly Skin Charity.
tsamaisoa ke  Ts'ebelisano ea Cookie ea GDPR
Boitsebiso ba Boinotši

Websaeteng ena e sebelisa di-cookie e le hore re ka u fa boiphihlelo bo botle ba mosebedisi. Boitsebiso ba li-cookie bo bolokiloe ho sebapali sa hau mme se etsa mesebetsi e kang ho u lemoha ha u khutlela hosaeteng ea rona le ho thusa sehlopha sa rona ho utloisisa likarolo tsa marang-rang tseo u li fumanang li thahasellisa le tse molemo haholo.