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Blog ea rona ke sebaka seo litho tsa sechaba sa EB li ka arolelanang liphihlelo tsa bona tsa EB. Ho sa tsotellehe hore na ba na le EB ka bobona, ba hlokomela motho ea phelang le EB, kapa ba sebetsa tlas'a tlhokomelo ea bophelo bo botle kapa bokhoni ba lipatlisiso bo amanang le EB.

Maikutlo le liphihlelo tsa sechaba sa EB tse hlahisitsoeng le ho arolelanoa ka lipale tsa bona tsa lipale tsa EB ke tsa bona. Ha se hakaalo hore li emela maikutlo a DEBRA UK. DEBRA UK ha e ikarabelle bakeng sa maikutlo a arolelanoang ka har'a blog ea lipale tsa EB. Maikutlo ao ke a setho ka seng.

Hlahisa lihloela

Albena Dinkova-Kostova o iponahatsa ka tlung le baithuti ba bararo ba tshwereng mangolo mme ba bososela khamera.

19th ka May 2026 ka Mop Albena Dinkova-Kostova

Tšebeliso e ncha ea lithethefatsi ho matlafatsa lisele tsa letlalo tsa EBS

Bala haholoanyane

Batho ba bararo ba apereng dihempe tse putsoa tsa DEBRA ba tsamaya tseleng ya serapa ba tshwarane ka matsoho mme ba phahamisa matsoho.

11th ka May 2026 by Rachael Stevens

Ho phethela phephetso ea ho tsamaea ka maoto ea lik'hilomithara tse 26 bakeng sa DEBRA UK

Bala haholoanyane

Paul Dimmock ka sutu o hlahisa dipatlisiso mabapi le seoa sa psoriasis sa lefatshe ka bophara ho basadi ba babedi ka pela skrine ya dijithale e bontshang poster ya saense.

7th April April 2026 ke Ngaka Paul Dimmock

Lefatšeng ka bophara ka EB

Bala haholoanyane

Moshanyana e monyane ya apereng digalase tse kgolo tse chitja tsa letsatsi le T-shirt ya "Palm Springs" o bososela kantle; o na le diplaster tse pedi letsohong la hae le letshehadi le lebanta le letala la letsoho.

25th March 2026 ka Jennifer Taylor

Ho phela le EB: Pale ea Jennifer le William

Bala haholoanyane

Bo-rasaense ba babeli ba apereng lijase tsa laboratori le liatlana ba buisana laboratoring. E mong o tšoere sejana sa petri, ka bobeli ba roetse likhalase, 'me sehatsetsi se nang le litokomane se bonahala ka morao.

20th February 2026 by Lebohang Chris

Lilemo tse mashome a mabeli ho latela: re se re fihlile bohōleng bofe ntoeng khahlanong le EB

Bala haholoanyane

Mosadi o nka selfie ka seiponeng ka fono ya hae ha ngwanana e monyane a eme pela hae, ka bobedi ba bososela.

19th February 2026 by Katie Archer

Ho haha bocha moloreng: kamoo DEBRA e ileng ea e-ba mohloli oa bophelo ba rona kateng

Bala haholoanyane

Mosadi ya nang le moriri o bobebe o nka selfie pela lewatle letsatsing le chabileng, maqhubu le lehodimo le leputswa le hlakileng ka morao.

9th February 2026 by Emily White

Ho phela le EB Simplex: Letoto la liqeto tse belaetsang (le hore na ke hobane'ng ha ke ikoahlaela le e 'ngoe ea tsona)

Bala haholoanyane

Prerna Kadam, ea apereng jase e tšoeu ea laboratori le liatlana tse pherese, o eme laboratoring, a shebile khamera.

XNUMmongo la February 2 by Prerna Kadam

Ho potlakisa ho sibolloa ha meriana ea kankere ho RDEB

Bala haholoanyane

Motho ea apereng joaloka Santa Claus o lutse sofeng e sootho le lesea le ngoana e monyenyane, ha motho e moholo—ea arolelanang pale ea 'm'ae ea EB—a eme ka mor'a bona, a bososela. Lifate tsa Keresemese le mekhabiso ea mekete li khantša bokamorao.

XNUMtjana ka la 16 by Natalie Stonehouse

Pale ea 'Mè ea EB

Bala haholoanyane