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Litaba tsa EB

Blog ea lipale tsa EB ke sebaka seo litho tsa sechaba sa EB li ka arolelanang liphihlelo tsa bona tsa EB. Ho sa tsotellehe hore na ba na le EB ka bobona, ba hlokomela motho ea phelang le EB, kapa ba sebetsa tlas'a tlhokomelo ea bophelo bo botle kapa bokhoni ba lipatlisiso bo amanang le EB.

Maikutlo le liphihlelo tsa sechaba sa EB tse hlahisitsoeng le ho arolelanoa ka lipale tsa bona tsa li-blog tsa EB ke tsa bona 'me ha li hlile ha li emele maikutlo a DEBRA UK. DEBRA UK ha e ikarabelle bakeng sa maikutlo a arolelanoang ka har'a blog ea lipale tsa EB, 'me maikutlo ao ke a setho ka seng.

Hlahisa lihloela

Batho ba bararo ba apereng dihempe tse putsoa tsa DEBRA ba tsamaya tseleng ya serapa ba tshwarane ka matsoho mme ba phahamisa matsoho.

11th ka May 2026 by Rachael Stevens

Ho phethela phephetso ea ho tsamaea ka maoto ea lik'hilomithara tse 26 bakeng sa DEBRA UK

Bala haholoanyane

Moshanyana e monyane ya apereng digalase tse kgolo tse chitja tsa letsatsi le T-shirt ya "Palm Springs" o bososela kantle; o na le diplaster tse pedi letsohong la hae le letshehadi le lebanta le letala la letsoho.

25th March 2026 ka Jennifer Taylor

Ho phela le EB: Pale ea Jennifer le William

Bala haholoanyane

Mosadi o nka selfie ka seiponeng ka fono ya hae ha ngwanana e monyane a eme pela hae, ka bobedi ba bososela.

19th February 2026 by Katie Archer

Ho haha bocha moloreng: kamoo DEBRA e ileng ea e-ba mohloli oa bophelo ba rona kateng

Bala haholoanyane

Mosadi ya nang le moriri o bobebe o nka selfie pela lewatle letsatsing le chabileng, maqhubu le lehodimo le leputswa le hlakileng ka morao.

9th February 2026 by Emily White

Ho phela le EB Simplex: Letoto la liqeto tse belaetsang (le hore na ke hobane'ng ha ke ikoahlaela le e 'ngoe ea tsona)

Bala haholoanyane

Motho ea apereng joaloka Santa Claus o lutse sofeng e sootho le lesea le ngoana e monyenyane, ha motho e moholo—ea arolelanang pale ea 'm'ae ea EB—a eme ka mor'a bona, a bososela. Lifate tsa Keresemese le mekhabiso ea mekete li khantša bokamorao.

XNUMtjana ka la 16 by Natalie Stonehouse

Pale ea 'Mè ea EB

Bala haholoanyane

Lesea le nang le matheba a mafubelu le a halefileng sefahlehong le tshwarwa ke motho e moholo ya apereng top e tala, ka lesela le mmala o bobebe le apesitsweng lesea—e leng se nkang motsotso paleng ya Darcie.

1st ka December 2025 ka Alice le Ben

Pale ea Darcie: ho fumana leseli masiung a lefifi ka ho fetisisa

Bala haholoanyane

Jessica o eme sethaleng a tšoere letšoao la "DEBRA The Butterfly Skin Charity", a bua ka maekrofono ka pel'a bokamorao bo bosoeu le bo pherese.

1st ka November 2025 ka Jessica Skeith

Pale ea Jessica ea EB: ho tantša ka mahlaseli

Bala haholoanyane

Mosali ea nang le li-scrubs, ea tsepamisitseng tlhokomelo ea meno, o tšoere ntja e nyenyane, e boreleli ka pel'a lebota le letala le tanka ea litlhapi. O a bososela mme a roetse digalase le letshwao la mabitso.

3rd October 2025 ka Jennifer Wood

Matsoho a bonolo bakeng sa pososelo e fokolang: tlhokomelo ea meno bakeng sa bana ba nang le EB

Bala haholoanyane

Mosali ea apereng junifomo ea lipapali tse putsoa, e leng karolo ea lelapa la hae la lipapali, o eme ka ntle ka pel'a terata a tšoere thupa ea hockey ea lebaleng 'me a bososela khamera, a le motlotlo ho emela EB.

Lilemong tsa leshome le metso e ' ka Laverne Martin

Ho tloha ho li-blister ho ea ho boronse: Leeto la machaba la hockey la Laverne

Bala haholoanyane