Re tšehetsa lipatlisiso joang

Re batla ho fumana le ho lefella liphekolo ho fokotsa ts'ebetso ea letsatsi le letsatsi ea EB le lipheko tsa ho felisa EB.

Re tla nahana ka likopo tsa thuso ea morero bakeng sa lipatlisiso lefapheng lefe kapa lefe le amanang le matšoao a mangata a EB. Re sebelisitse liponto tse limilione tse 20 lilemong tse 40 tse fetileng, re tšehetsa lipatlisiso tsa lichelete naheng ka bophara le machabeng ho re atametsa bokamoso boo ho seng motho ea nang le bothata ba EB.

Chelete ea rona ea liphuputso e fanoa ka ts'ebetso e thata e kenyelletsang Komiti ea rona ea Charitable Purposes Committee (CPC), lentsoe la litho, bahlahlobi ba ikemetseng ba kantle le ba rona. Phanele ea Keletso ea Lithuso tsa Mahlale. Re tšehetsoa le ho hlahlojoa ka litho tsa rona tsa Mokhatlo oa Lipatlisiso tsa Bongaka (AMRC) tse netefatsang hore re tsetela mererong ea boleng bo phahameng ka ho fetisisa ba saense e tla fana ka monyetla o motle ka ho fetisisa oa ho lebisa ntlafatsong le katlehong ea kutloisiso le phekolo ea EB.

Ts'ebetso ea likhau tsa lithuso tsa lipatlisiso tsa DEBRA UK

Likopo tse fihlelang litekanyetso tse boletsoeng ho rona leano la ho etsa lipatlisiso e tla ba tlas'a ho hlahlojoa le ho hlahlojoa ke Lefapha la Boeletsi la Lichelete tsa Mahlale la DEBRA UK bakeng sa maikutlo a litsebi tsa mahlale le ke Komiti ea rona ea Merero ea Boipheliso (CPC) e kenyelletsang boemeli ba litho. Litlhahiso tsa bona li tla hlahisoa ho li-trustee tsa DEBRA UK bakeng sa qeto ea ho qetela.

Maikutlo a lithaka

Bahlahlobi ba lithaka e tla ba litsebi lefapheng le nepahetseng 'me ba phatlalatse hore ha ho na mokhatlo, tšebelisano-'moho, oa botho kapa tse ling tsa likhohlano tsa lithahasello. Bakopi ba tla ba le monyetla oa ho bona le ho araba litlhahlobo tse sa tsejoeng kaha litlhaloso tse hahang li ka sebelisoa ho ntlafatsa kopo ea lipatlisiso. Re leboha bafuputsi bohle ba ipha nako ea ho kenya letsoho ho DEBRA UK ka tsela ena. Haeba u thahasella ho bala likopo le ho fana ka maikutlo a litsebi bakeng sa rona, ka kopo siea lintlha tsa hau.

Litho tsa DEBRA li re thusa ho etsa qeto ea hore na re tšehetsa lipatlisiso life

Litho tsa DEBRA UK tseo e leng litsebi ka boiphihlelo ka lebaka la boiphihlelo ba bona ba EB ba tla memeloa ho fana ka lintlha le maikutlo a thehiloeng ho Abstract and Value to EB likarolo tsa kopo tse lokelang ho utloisisoa ho bamameli. Karolo kapa likarolo tsena kaofela li ka arolelanoa webosaeteng ea rona haeba kopo e amohetsoe. Re leboha litho tsohle tsa rona tse kenyang letsoho mahlale a tsona ka tsela ena. Haeba u setho sa DEBRA UK 'me u ka thabela ho bala kakaretso ea kopo le ho fana ka lintlha le maikutlo bakeng sa rona joalo ka setsebi ka boiphihlelo, ha ho hlokahale hore u be le semelo sa mahlale ho hang, empa boikemisetso ba ho arolelana mehopolo ea hau feela. Fumana ho eketsehileng 'me u tlohele lintlha tsa hau 'me re tla ikopanya le uena ka monyetla o latelang oa ho kenya letsoho. Hape o tla kopuoa ho phatlalatsa khohlano efe kapa efe ea lithahasello e ka kenyelletsang ho sebetsa lipatlisisong tsa EB ka bouena kapa bakeng sa k'hamphani ea meriana e etsang liphekolo tse ka bang teng tsa EB.

Phanele ea Keletso ea Lithuso tsa Mahlale

Re leboha litsebi tsena tse kholo mafapheng a bona tse kenyang nako ea tsona ho DEBRA UK e le hore lichelete tsa rona li ka sebelisoa ka bohlale ho feta merero e metle ea lipatlisiso feela.

DEBRA UK Phanele ea Keletso ea Lithuso tsa Mahlale litho li hlokoa hore li ikamahanye le Melaoana ea Tšebeliso ea Phanele le leano la Conflict of Interest.

Sehlopha sa likeletso tsa lipatlisiso se etelletsoe pele ke Moprofesa Edel O'Toole mme se na le litsebi makaleng a fapaneng a amanang le matšoao a EB ba tla nahana ka likopo, litlhahlobo le likarabo / ntlafatso ea bakopi ho etsa likhothaletso tsa bona ho DEBRA UK.

Mokhatlo oa Mokhatlo oa Lipatlisiso tsa Bongaka (AMRC)

Re litho tse motlotlo tsa Mokhatlo oa Mokhatlo oa Lipatlisiso tsa Bongaka (AMRC) e fanang ka tataiso le koetliso ho re tšehetsa ho khetha merero e metle ka ho fetisisa ea lipatlisiso le ho etsa lihlahlobo tsa kamehla tsa lits'ebetso tsa rona tsa likhau tsa lithuso tsa lipatlisiso. Ts'ebetso ea rona e netefatsa hore merero e mecha ea lipatlisiso e hahela holim'a tsebo e teng, e re thusang ho tsetela feela mererong e fanang ka monyetla o motle oa ho tlisa phetoho.

Tlhokomelo ea liphallelo

Bakopi ba atlehileng bakeng sa lithuso tsa lichelete tsa DEBRA UK ba tla lefshoa kotara ka mor'a ho fumana invoice e loketseng.

Tlaleho ea selemo le selemo ea khatelo-pele e tla kenyelletsa litlaleho tsa saense, tsa lichelete le tsa boipelaetso mabapi le ho finyella lipakane tse boletsoeng kopong ea pele e le hore batšehetsi ba rona ba lichelete le litho ba ka lula ba le teng ka lipatlisiso tsa hajoale.

Likopi tsa lipampiri tsohle tse hatisitsoeng, libuka tse ngotsoeng ka letsoho, litlhaloso tsa likopano le li-poster li lokela ho romelloa ho DEBRA UK ho pholletsa le nako ea thuso le ka mor'a moo ha mosebetsi o tšehetsoeng ke DEBRA UK o hlahisoa 'me chelete e tsoang ho DEBRA UK e ananeloa liphellong tsena.

Qetellong ea nako ea lithuso, ho tla hlokahala tlaleho ea ho qetela, ho kenyeletsoa le kakaretso ea kakaretso, hammoho le lethathamo la likhatiso likoranteng tse hlahlobiloeng ke lithaka.

Tšehetso ea lichelete e ke ke ea eketsoa 'me li-'top ups' li ke ke tsa fanoa kahoo ho bohlokoa ho hlalosa liphello tse ka khonehang bakeng sa nako ea thuso.

Maano le likhokahano

• Melao le lipehelo tsa likhau tsa rona tsa lithuso
• Leano la tšebeliso ea liphoofolo liphuputsong
• Setsi sa Sechaba sa 3Rs
• Likhohlano tsa thahasello liphuputsong- tse fumanehang ka imeile research@debra.org.uk.
• Melao e meng ea DEBRA UK
• Melao-motheo ea AMRC ea tlhahlobo ea lithaka
• Leano la rona la ho etsa lipatlisiso