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Batla li-webinars, litaba, li-blogs, li-podcasts le livideo

Lintlafatso ho tsoa ho bafuputsi ba rona le litsebi tsa bongaka le likhokahano tsa lisebelisoa tsa video le molumo.

Botala bo boputsoa bo nang le mongolo: "Letoto la webinar la Patlisiso le Bophelo bo Botle. Fumana tse ncha liphuputsong tsa EB, ithute ka lihlooho tse bohlokoa ho sechaba sa EB, 'me u arabe lipotso tsa hau ke litsebi." Letšoao la Debra ka ho le letona.

Liwebinars tsa Patlisiso le Bophelo bo Botle

Letoto la rona la webinar la Patlisiso le Bophelo bo botle le fana ka baeti ba fapaneng ba buang ka boiphihlelo ba bona ba lipatlisiso tsa EB le tlhokomelo ea bophelo bo botle. 
Shebella joale
Lithaele tsa scrabble mopeleto "BLOG" holim'a lepolanka li u mema hore u hlahlobe se secha lipatlisisong tsa EB.

Blog ea lipatlisiso

Blog ea rona ea lipatlisiso ea EB e fana ka lingoliloeng tse nang le temohisiso tse ikakhelang ka setotsoana litšibollong tsa morao-rao, liphekolo tse tsoetseng pele, le mathata a tsoelang pele ao ba sebetsang ho fumana pheko ba tobaneng le 'ona.
Bala haholoanyane
Letsoho le tšoere smartphone, le bonts'a lets'oao la app ea YouTube skrineng, le itokiselitse ho hlahloba livideo tsa lipatlisiso le ho ikakhela ka setotsoana linthong tse sa feleng tse sibollotsoeng.

Livideo tsa lipatlisiso

Ithute haholoanyane ka liphuputso le thekenoloji ea lipatlisiso ea EB e tšehelitsoeng ka lichelete ke DEBRA ka livideo tse tsoang ho bafuputsi ba rona ba litsebi le tse ling.
Shebella joale
Komiki ea kofi, smartphone e bonts'ang tsa morao-rao mabapi le tse ncha liphuputsong tsa EB, le likhalase tsa mahlo li lutse holim'a tafole ea lepolanka haufi le koranta e mennoeng.

Litaba tsa lipatlisiso tsa EB

Lula u tseba ka likhatelopele tsa morao-rao liphuputsong tsa Epidermolysis Bullosa (EB).
Bala haholoanyane
Maekerofounu setulong kgahlanong le bokamorao bo boputswa bo nang le mabone a kganya.

dipodcast

Hohle moo u leng teng, ho sa tsotellehe hore na u batla ho etsa eng, mamela litaba tsa morao-rao tsa EB le lipale tse tsoang ho batho ba phelang le EB ka li-podcast tseo re li ratang haholo.
Mamela hona joale
Letšoao la DEBRA UK. Letšoao le na le litšoantšo tsa serurubele se seputsoa le lebitso la mokhatlo. Ka tlase, tagline e baleha "The Butterfly Skin Charity.
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Boitsebiso ba Boinotši

Websaeteng ena e sebelisa di-cookie e le hore re ka u fa boiphihlelo bo botle ba mosebedisi. Boitsebiso ba li-cookie bo bolokiloe ho sebapali sa hau mme se etsa mesebetsi e kang ho u lemoha ha u khutlela hosaeteng ea rona le ho thusa sehlopha sa rona ho utloisisa likarolo tsa marang-rang tseo u li fumanang li thahasellisa le tse molemo haholo.